Para los que me conoceis, sabeis que soy estudiante de medicina, por lo cual estoy bastante sensibilizado con el tema de enfermedades raras. Una de estas enfermedades, que aunque no es de las peores sí resulta horrible (sobre todo para la familia) es la Ataxia de Friedreich.
Un padre de familia, antiguo dueño de una empresa de miniaturas, ha sacado a delante un proyecto de miniatura para contribuir con todos sus beneficios a la Investigación en la Ataxia de Friedreich.
Las primeras miniaturas se vendieron en nada, pero está preparando una segunda tanda. A continuación, os dejo el post original del autor de la idea (clicando en la imagen, os lleva a comprar la mini en ebay):
Weird WWII: "SUPER J" Charity Miniature: This gaming mini was made in the image of our son Jason and his sidekick, Snakie. Jason was born with a rare genetic disease called Friedreich's Ataxia. This is a degenerative disease that attacks many areas of the body, including the brain, spinal cord and heart. There is currently no treatment for Friedreich's Ataxia and it is a life-shortening illness, so we're trying to raise money for theFriedreich's Ataxia Research Alliance (FARA). This organization is our only hope for a cure.
Jason has a quickly advancing case and is losing his ability to walk, see and speak clearly. He also suffers from heart disease and skeletal problems. Since there is currently no treatment for Friedreich's Ataxia, raising money for FARA is really our only recourse. Jason is a happy boy enjoying a great childhood and we want him in our lives as long as possible! As many of you know, I use to own What The?! Miniatures and it was my son's diagnosis that led me to sell it off so that I could better make him more comfortable. Since he loves minis we thought his own mini would be awesome! We are selling Super J minis on eBay, where all proceeds will be automatically donated to FARA through MissionFish.
Aaron Brown was kind enough to donate his time and skills to sculpt Super J for us and Forrest Harris generously cast Super J for us, free of charge. We are very grateful for their help!
The Super J mini comes unpainted and is in the 28mm range (actually 18mm in height since his just a little kid after all) on a round 20mm slot base. The one pictured here was painted by my pal Simon Bradley.
For $10, with free shipping, you can get a great miniature for a great cause!
Brian, Amy, Jason and Lola
Feel free to use the pics to plug the mini on your own blogs or other forums that you might think would be interested. Every bit of exposure just might help my little boy live a longer and more comfortable life.